The Diving-Bell and the Butterfly
No, this post is not about things which have been taken out of Boy Abunda's ass. It's the title of a book I'm reading right now and which has been adapted into a movie directed by Julian Schnabel. For the movie which shares the title of the book, Schnabel won the best director prize in Cannes this year. If you've not heard of the book, you will be absolutely amazed on what it is about.
The Diving-Bell and the Butterfly is the title of the memoir of French journalist Jean Dominique Bauby. On December 8, 1995 and at the age of 43, Bauby, who was at that time the editor-in-chief of French Elle, suffered a massive (and not to mention catastrophic) stroke. He was in a coma for 20 days and when he awoke, he found that he had locked-in syndrome. Locked-in syndrome is like the phrase "global warming" or "venereal disease" in that it sounds benign but the reality of what it is would absolutely make you shit your shorts. Bauby discovered that he could no longer move his body from the head to the feet. He was totally paralyzed save for his left eyelid. Yes, his..left...eyelid.
You know that old chestnut about making lemonade when life gives you lemons? Well, it's rather insulting to use a cliche like that to reveal that Bauby decided to write a book about his life with locked-in syndrome. How did he do it? He used his eyelid to dictate what he wanted to say. As he writes in the book:
"It is a simple enough system. You read off the alphabet...until the blink of my eye I stop you at the letter to be noted."
The "you" is his assistant Claude Mendibil who went through the French alphabet on the basis of the frequency of use to make it a more time efficient endeavor. Regardless, it took 200,000 blinks to finish the book.
And so The Diving-Bell and the Butterfly is an intimate look at how it is to live life with a mind as sharp and brilliant as Bauby had prior to the stroke and have this trapped in a lifeless and unwilling body. The book's title makes this delineation clearer -- the diving bell is his body which has been dragged down into the ocean depths of immobility and the butterfly is his mind which flies through space and time unfettered and free. Ten days after the publication of Bauby's book in France (Le scaphandre et le papillion) back in 1997, Bauby died of heart failure.
I haven't finished reading the book yet. Although it only clocks in at 139 pages, I want to take my time to read it. Knowing all the effort that was put into it, it deserves nothing less than my undivided attention.